POPIA Code of Conduct for Research (with corrigendum)

Rachel Adams; Fola Adeleke; Dominique Anderson; Ahmed Bawa; Nicola Branson; Alan Christoffels; Jantina de Vries; Harriet Etheredge; Eleni Flack-Davison; Mark Gaffley; Monique Marks; Mongezi Mdhluli; Safia Mahomed; Mapitso Molefe; Tshilidzi Muthivhi; Caroline Ncube; Antonel Olckers; Maria Papathanasopoulos; Jane Pillay; Tobias Schonwetter; Jerome Amir Singh; Carmen Swanepoel; Michèle Ramsay

doi:10.17159/sajs.2021/10933

Authors

Rachel Adams Human Sciences Research Council, Pretoria, South Africa https://orcid.org/0000-0003-1436-190X
Fola Adeleke School of Law, University of the Witwatersrand, Johannesburg, South Africa https://orcid.org/0000-0003-4340-9255
Dominique Anderson South African National Bioinformatics Institute, University of the Western Cape, Cape Town, South Africa https://orcid.org/0000-0002-4337-8009
Ahmed Bawa Universities South Africa, Pretoria, South Africa https://orcid.org/0000-0002-5889-5295
Nicola Branson Southern African Labour Development Research Unit, University of Cape Town, Cape Town, South Africa https://orcid.org/0000-0001-6630-606X
Alan Christoffels South African National Bioinformatics Institute, University of the Western Cape, Cape Town, South Africa https://orcid.org/0000-0002-0420-2916
Jantina de Vries Department of Medicine, University of Cape Town, Cape Town, South Africa https://orcid.org/0000-0001-7192-2633
Harriet Etheredge 1.Wits Donald Gordon Medical Centre, University of the Witwatersrand, Johannesburg, South Africa; 2.Steve Biko Centre for Bioethics, School of Clinical Medicine, University of the Witwatersrand, Johannesburg, South Africa https://orcid.org/0000-0002-2581-5754
Eleni Flack-Davison Research Office, University of the Witwatersrand, Johannesburg, South Africa https://orcid.org/0000-0003-4126-2923
Mark Gaffley Faculty of Law, University of Cape Town, Cape Town, South Africa
Monique Marks Urban Futures Centre, Durban University of Technology, Durban, South Africa https://orcid.org/0000-0002-4926-6972
Mongezi Mdhluli South African Medical Research Council, Cape Town, South Africa
Safia Mahomed College of Law, University of South Africa, Pretoria, South Africa https://orcid.org/0000-0002-3784-5838
Mapitso Molefe Council for Scientific and Industrial Research, Pretoria, South Africa
Tshilidzi Muthivhi National Department of Health, Pretoria, South Africa https://orcid.org/0000-0001-8445-4621
Caroline Ncube Department of Commercial Law, University of Cape Town, Cape Town, South Africa https://orcid.org/0000-0003-0933-937X
Antonel Olckers DNABiotec, Pretoria, South Africa https://orcid.org/0000-0002-4974-5666
Maria Papathanasopoulos 1.Assistant Dean: Research and Postgraduate Affairs, University of the Witwatersrand, Johannesburg, South Africa; 2.Director: HIV Pathogenesis Research Unit, University of the Witwatersrand, Johannesburg, South Africa https://orcid.org/0000-0001-9504-0950
Jane Pillay National Health Laboratory Service, Johannesburg, South Africa
Tobias Schonwetter Director: Intellectual Property Unit, University of Cape Town, Cape Town, South Africa https://orcid.org/0000-0002-7859-4465
Jerome Amir Singh School of Law, Howard College, University of KwaZulu-Natal, Durban, South Africa.
Carmen Swanepoel Division of Haematological Pathology, Stellenbosch University, Stellenbosch, South Africa
Michèle Ramsay Director: Sydney Brenner Institute for Molecular Bioscience, University of the Witwatersrand, Johannesburg, South Africa https://orcid.org/0000-0002-4156-4801

DOI:

https://doi.org/10.17159/sajs.2021/10933

Abstract

The POPIA Code of Conduct for Research, as it is currently being considered, pertains to research conducted in South Africa, which, as part of the research process, uses personal information as defined under POPIA. This Discussion Document outlines the main areas relating to the processing of personal information for research purposes which the proposed Code will address, including what consent models would be permissible under POPIA; the issues in relation to genetic research and the processing of personal information contained in inherited characteristics; the use of information matching programmes by researchers; and the use of personal information obtained from social media platforms for research. With ongoing and wide consultation with the scientific community in South Africa and all relevant stakeholders, it is hoped that the Code will provide guidance in supporting the lawful and responsible use of personal information while conducting scientific research in South Africa.

The purpose and scope of the Code of Conduct for Research are set out in the accompanying Commentary available at https://doi.org/10.17159/sajs.2021/10935

POPIA Code of Conduct for Research (with corrigendum)

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